Come on!

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi...

Positive Affiliations 5 Straight to it! #lesswaffle! 1. Tysabri 108. Another? Thankfully YES! Those who know, know! My MS treatment, my DMT ( Disease Modifying Treatment ; DMD…Drug), and it has done and doing its job. Touch wood. I like to think that the week prior to the infusion I was quite active and energetic in my own way; then the reminder. Tysabri gets commonly named ‘magic juice’ by its MS recipients. I can’t quote stats for those of us who get Tysabri that are NOT affected by the time between infusions. Some are though. Commonly I am one that knows when it is the 4 th week of the 4. More fatigue with symptomatic responses as an example. A top-up then. Literally! The weekend was largely spend sat on my arse doing not a lot. The actual day after the infusion (before the weekend) I did ‘receive’ a session with an MS specialist Physical Trainer, all positive for the MS journey’s benefit. Then a welcome sit for a meditation session thereafter. Back ...