Come on!

A quick blog, as I have been writing something else for a while. The context below is a copy of some of the words - all hugely draft by the way - just to keep my Blogger alive! My life, my Story so far, at 46 anyway. That is an opening line as I add to a, as I call it, something I wrote of a 'cathartic' means of downloading some mainly negative thoughts following what was an MS social activity. There. That's an introduction to my world living wit h Multiple Sclerosis. Hereafter as "MS" (M y S tory ). If it wasn't for the wonderful (I'm a sarcastic c**t (that swears) at times) neurological disease of #MS, I wouldn't have even thought that I would find myself, by choice, sitting in a Costa on one's Jack Jones (I am also very good at spouting shite!) effectively having a go at the start of a book! A book! I'm an engineer for fucks sake. Numbers not words. Well, apparently everyone has a book in them. Ahem! Blogging is one thing, writing a book is...

  PIP reflection 2024 Over the last few months, it’s safe to say (metaphorically) that my head had been somewhat up my arse; with anxiety. All due to my friend P I flipping P. Yes. Personal Independence Payment ( PIP ). Having received the renewal form LAST year (that’s 2023 as of typing), I anxiously stressed to get what legitimate proof I could get to assist my honest form answers. Big kudos to the Citizens Advice Bureau for help with said form ‘completion’. I was struggling. And without ANY surprise, I still live with MS ! Multiple Sclerosis the chronic Central Nervous System disease. Has it improved? No. Is it progressing? Yes. Is there a cure? I and about 2.3+m others wish. Anyway, part of my ‘processing’ stuff is that I keep notes. Yip, my memory is far from good. Cognition . So, here are 3 fairly recent ‘notes’ relating to PIP that I still have in my phone for a short blog and how one’s anxiety has been: No escape (1st May) Missed phone calls, a voice message. Joanne ab...

Is what it is IT IT IT! There is no “It” in the title. Well, apart from actually making up the word “tITtle”! Not a mistake. When chatting about whatever, and #MS comes up as pretty usual when at an MS Social, that phrase is an acknowledgement of acceptance (canny phrase itself!). By saying it, we know that we do know what we/it mean/s. Good repeatability there! For myself, even by voicing it with another understanding MSer, it’s like a ‘mutual respectful recognition’ sharing. Acceptance. Here’s a tangent. I have recently started with Ocrevus as my DMD . So far (literally a couple of months as of typing) so good. It is doing it’s thing. I’m no better, and much more importantly no worse. Yes, I have had questions about my Ocrevus, due to the lowering of one’s immune system, and feeling terrible for a while. But! This time of year everybody seems to pick up a ‘bug’ or 2. Even some bloody COVID – I didn’t – phew. SAD. That’s S.A.D. “Seasonal affective disorder (SAD) is...