Music

Music My Story

I am / was, an engineer now with multiple sclerosis for company! One thing that has never changed for me within my life is my love for music!

Decade

I am now 38 and have been about for 5 decades believe or not!

Born ’78 but not quite big enough then for any opinion aged just 2! Hence no direct 70s music from me at this stage in this story!

So I’ll start with long-term memories from the 80s first!

Where did it all begin?

I can to this day remember – honest! - listening to the Beach Boys through my Dad’s HUGE cans (earphones! Which were probably not that big at that time.) Surfin’ Safari etc. Good Vibrations took on a different meaning later for me, not knowing then my future career would have me dealing with vibrations!

30+ years later after its first release, Ghostbusters

– everyone knows the tune, don’t they – and I’ve still got the original 7” single, my very first piece of vinyl, which I’ve played at some parties (all be said parties a good few moons ago!) when a change might be needed.

As I grew older things changed. Boy did they!

I won’t subject you to any ‘proper hardcore’; maybe a bit drum and bass ;-) I loved that time even though I fully appreciate hardcore is highly unmusical. Today’s ‘claimed’ hardcore is nothing of the sort; I think anyway. Showing age!

'And now for something completely different'!

Comments

F1 Aerodynamics in Schools

Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge. BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a

MS blog October 2023

MS blog October 2023 25/9/23 This week of this, bad sleep, fatigue, affecting speech - #Dysphasia - and fatigue linked problems like forgetting to do certain things, eg. Download Toon ticket properly! Tired. 04/10/23 (Wednesday) Again bad sleeps, bad #fatigue. Here's the thing. More notable 'cognitive overthinking' in that I am not on the money. Yet, was fine for the #MS #Zoom on Monday night. And starting to unintentionally upset Catherine, and therefore me too. FB post: #Tysabri At time of writing, I am pretty bloody next-level-tired. Or feeling fatigued, in the #MS world. Those who know that; know. Yes, I AM saying that #MS #Fatigue IS different to ‘just’ being tired. Who am I to say that? Someone who has lived with the twat (#MultipleSclerosis) for maybe 26 years now. Maybe more. I don’t know. So, #Tysabri. Well I started with this amazing #DMD (disease modifying drug) over 13 years ago, and it “made me a new man”

Ocrevus

Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi

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