Skip to main content

Is what it is

Is what it is


IT IT IT! There is no “It” in the title. Well, apart from actually making up the word “tITtle”! Not a mistake.

When chatting about whatever, and #MS comes up as pretty usual when at an MS Social, that phrase is an acknowledgement of acceptance (canny phrase itself!).

By saying it, we know that we do know what we/it mean/s. Good repeatability there!

For myself, even by voicing it with another understanding MSer, it’s like a ‘mutual respectful recognition’ sharing. Acceptance.

Here’s a tangent. I have recently started with Ocrevus as my DMD. So far (literally a couple of months as of typing) so good. It is doing it’s thing. I’m no better, and much more importantly no worse.

Yes, I have had questions about my Ocrevus, due to the lowering of one’s immune system, and feeling terrible for a while. But! This time of year everybody seems to pick up a ‘bug’ or 2. Even some bloody COVID – I didn’t – phew.

SAD. That’s S.A.D.

“Seasonal affective disorder (SAD) is a type of depression that comes and goes in a seasonal pattern. SAD is sometimes known as "winter depression" because the symptoms are usually more apparent and more severe during the winter. Some people with SAD may have symptoms during the summer and feel better during the winter.        NHS


HOWEVER! After a little Google into SAD – a positive diagnosis! I do not have SAD! The winter blues maybe. Overthinker 1millionpercent yes!


#thosewhoknowknow

Ocrevus and winter. Maybe the winter has inadvertently led to slower mornings. As a ‘morning person’, I always have been of that character. Up, routine [work SAD FACE], function. Now, that seems to have taken a slow-down and some. Meh.

Then there’s ‘recluse Roger’. Without much point and or reasons to go out, I simply stay in! I’m cool with that; to a degree. At the same time, I am in love with my other (and of course, better) half. Catherine is beyond understanding and as a working single mam of 3 cracking children, the times we share together without doubt there and loved. Too many years living by myself partially to blame!

Aye, I have MS. Plain and simple it could simply be that. And as everybody, I am aging. Getting older. Babies are since the day they are born! That’s aging, from day 1.

A bit (lots of “bits” going on!) of this season affecting my desire, motivation and double-definitely energy. All these damn thing fit together with my fun (and managed best I can) central nervous system disease.

Still! I have a January birthday (enjoyed!) so all isn’t too bad!

What is your favourite season, and why?

Comments

  1. Michelle Jolley13 March 2024 at 22:46

    Spring is my favourite season Rog. When the weather turns and those flowers come out. X

    ReplyDelete

Post a Comment

Popular posts from this blog

F1 Aerodynamics in Schools

Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge.  BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a

MS blog October 2023

  MS blog October 2023 25/9/23 This week of this, bad sleep, fatigue, affecting speech - #Dysphasia - and fatigue linked problems like forgetting to do certain things, eg. Download Toon ticket properly! Tired.                                                 04/10/23 (Wednesday) Again bad sleeps, bad #fatigue. Here's the thing. More notable 'cognitive overthinking' in that I am not on the money. Yet, was fine for the #MS #Zoom on Monday night. And starting to unintentionally upset Catherine, and therefore me too.   FB post:   #Tysabri At time of writing, I am pretty bloody next-level-tired. Or feeling fatigued, in the #MS world. Those who know that; know. Yes, I AM saying that #MS #Fatigue IS different to ‘just’ being tired. Who am I to say that? Someone who has lived with the twat (#MultipleSclerosis) for maybe 26 years now. Maybe more. I don’t know. So, #Tysabri. Well I started with this amazing #DMD (disease modifying drug) over 13 years ago, and it “made me a new man”

Ocrevus

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi