Skip to main content

Early 2023 MS

Early 2023 MS



A quick rant of realisation. This year, certain things - MS things - have made me realise further about my bastard condition, illness, disability, whatever.


Thankfully nothing too dramatic at all, just me being an overthinking twat.



Falls

A couple of; internally and externally 


Fatigue

Showing its head all for the more


Cognition

Noticing how it’s worsening; in my head lol


Yet, it is the winter season and I am all too aware of that. These days it affects me more. MS affliction and joints too (wear and tear, fair cop)!


A few things:

  • That I feel the need to walk more (knees disagree)

  • I should 'somehow' socialise more

  • Watch less TV (mental and financial benefits!)

  • Be more mindful of my balance

  • Keep searching for motivation with improvement

  • Always accept more; Wembley* is a no-go

  • Grab back some self esteem


And that’s a few?! Well, yes. Always more. I’m human. Who’s not.


I’m not going to waffle on here about the above ‘list’. However, there is one worthy - at time of writing - of note.



Wembley. The stadium in London. Where football finals are held. NEWCASTLE ARE GOING IN A FEW DAYS! I am hellishly excited by this as a die-hard fan and supporter.



So what’s the negative? Aside from tickets, the fact they are like rocking horse shit, I am disabled, it's accessible.


I have MS. We know that. It isn’t a life stopper. Logistics become somewhat harder to deal with, and that alone is the stopper.


I would love to go, there is no doubt about that. Yet, realism is exactly that too. 45 years old yadda yadda, mindful enough of knowing what isn’t really, umm, realistic.


Next final for us though I will plan a journey of sorts that wouldn’t knack me too much. Or something like that! Ha


Howay the lads! Carabao Cup 2023! Newcastle United Football Club!


Labels:

Comments

Post a Comment

Popular posts from this blog

F1 Aerodynamics in Schools

Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge.  BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a
Read more

MS blog October 2023

  MS blog October 2023 25/9/23 This week of this, bad sleep, fatigue, affecting speech - #Dysphasia - and fatigue linked problems like forgetting to do certain things, eg. Download Toon ticket properly! Tired.                                                 04/10/23 (Wednesday) Again bad sleeps, bad #fatigue. Here's the thing. More notable 'cognitive overthinking' in that I am not on the money. Yet, was fine for the #MS #Zoom on Monday night. And starting to unintentionally upset Catherine, and therefore me too.   FB post:   #Tysabri At time of writing, I am pretty bloody next-level-tired. Or feeling fatigued, in the #MS world. Those who know that; know. Yes, I AM saying that #MS #Fatigue IS different to ‘just’ being tired. Who am I to say that? Someone who has lived with the twat (#MultipleSclerosis) for maybe 26 years now. Maybe more. I don’t know. So, #Tysabri. Well I started with this amazing #DMD (disease modifying drug) over 13 years ago, and it “made me a new man”
Post a Comment
Read more

Ocrevus

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi
Post a Comment
Read more