Skip to main content

Early 2023 MS

Early 2023 MS



A quick rant of realisation. This year, certain things - MS things - have made me realise further about my bastard condition, illness, disability, whatever.


Thankfully nothing too dramatic at all, just me being an overthinking twat.



Falls

A couple of; internally and externally 


Fatigue

Showing its head all for the more


Cognition

Noticing how it’s worsening; in my head lol


Yet, it is the winter season and I am all too aware of that. These days it affects me more. MS affliction and joints too (wear and tear, fair cop)!


A few things:

  • That I feel the need to walk more (knees disagree)

  • I should 'somehow' socialise more

  • Watch less TV (mental and financial benefits!)

  • Be more mindful of my balance

  • Keep searching for motivation with improvement

  • Always accept more; Wembley* is a no-go

  • Grab back some self esteem


And that’s a few?! Well, yes. Always more. I’m human. Who’s not.


I’m not going to waffle on here about the above ‘list’. However, there is one worthy - at time of writing - of note.



Wembley. The stadium in London. Where football finals are held. NEWCASTLE ARE GOING IN A FEW DAYS! I am hellishly excited by this as a die-hard fan and supporter.



So what’s the negative? Aside from tickets, the fact they are like rocking horse shit, I am disabled, it's accessible.


I have MS. We know that. It isn’t a life stopper. Logistics become somewhat harder to deal with, and that alone is the stopper.


I would love to go, there is no doubt about that. Yet, realism is exactly that too. 45 years old yadda yadda, mindful enough of knowing what isn’t really, umm, realistic.


Next final for us though I will plan a journey of sorts that wouldn’t knack me too much. Or something like that! Ha


Howay the lads! Carabao Cup 2023! Newcastle United Football Club!


Comments

Popular posts from this blog

MS

Living with MS Edinburgh *This is my bit blog and therefore my thoughts/options * on Living with MS Edinburgh being an information day for anyone affected by MS that I happily attended, and will be more about the day than the travel to and from it ! This event was held in the Sheraton Hotel which was beautifully laid out, in a spacious floor in the hotel with many orange-clad volunteers supporting the 150 attendees. MS Scotland The area in the hotel had been planned well, wasn’t too big or small offering fine accessibility and had plenty of MS stuff throughout! So what was the order of the day, what happened? It began with a welcome from the chair, Mary Douglas from the MS Society Scotland (9:45 – 10:00) welcoming us and touching on what was ahead. Breaking Boundaries in MS Research , was started straight after ( ~ 10:00) by Becky Driscoll. A fairly generic(ish) overview (IMO!) of MS initially, presented very well. The content was detailed and shows/sh...

Is what it is

Is what it is IT IT IT! There is no “It” in the title. Well, apart from actually making up the word “tITtle”! Not a mistake. When chatting about whatever, and #MS comes up as pretty usual when at an MS Social, that phrase is an acknowledgement of acceptance (canny phrase itself!). By saying it, we know that we do know what we/it mean/s. Good repeatability there! For myself, even by voicing it with another understanding MSer, it’s like a ‘mutual respectful recognition’ sharing. Acceptance. Here’s a tangent. I have recently started with Ocrevus as my DMD . So far (literally a couple of months as of typing) so good. It is doing it’s thing. I’m no better, and much more importantly no worse. Yes, I have had questions about my Ocrevus, due to the lowering of one’s immune system, and feeling terrible for a while. But! This time of year everybody seems to pick up a ‘bug’ or 2. Even some bloody COVID – I didn’t – phew. SAD. That’s S.A.D. “Seasonal affective disorder (SAD) is...

PIP reflection 2024

  PIP reflection 2024 Over the last few months, it’s safe to say (metaphorically) that my head had been somewhat up my arse; with anxiety. All due to my friend P I flipping P. Yes. Personal Independence Payment ( PIP ). Having received the renewal form LAST year (that’s 2023 as of typing), I anxiously stressed to get what legitimate proof I could get to assist my honest form answers. Big kudos to the Citizens Advice Bureau for help with said form ‘completion’. I was struggling. And without ANY surprise, I still live with MS ! Multiple Sclerosis the chronic Central Nervous System disease. Has it improved? No. Is it progressing? Yes. Is there a cure? I and about 2.3+m others wish. Anyway, part of my ‘processing’ stuff is that I keep notes. Yip, my memory is far from good. Cognition . So, here are 3 fairly recent ‘notes’ relating to PIP that I still have in my phone for a short blog and how one’s anxiety has been: No escape (1st May) Missed phone calls, a voice message. Joanne ab...