Skip to main content

MS

Research


I always like to attend research talks at suitable – MS! – events to try and keep up to date as an interested patient. We know there is a great deal of related news that appears in the media, that does not actually carry a great deal of weight behind the copy due to their sources (that I know of not!). So I had to attend the ‘Making a difference through research’ talk.

The lecture/talk was indeed a Neurologist talk performed by Professor Siddharthan Chandran. A very knowledgeable and funny guy!

As an avid listener, I literally scribbled down a few notes only:

> STEM Cell research positives carrying belief. Remyelination.


> Future MS. Removing uncertainty. Future-ms.org


> GUT reaction study. 60-80% autoimmune activity occurs in the gut.


It made sense then! Those 3 notes might not be useful at all, but here’s the but. Me doing my own bit research to support this blog I came across this talk, missing a few new/er ideas for your own perusal…






Wow. Outstanding. Hopeful.

I grabbed a glass of water – hydration!– and onto Mindfulness!




Mindfulness


Mindfulness is something I have an interest in, enough that I have experienced my first taster with Stuart Sadler, an excellent qualified clinical psychologist and even a couple of Buddhism sessions (had no idea, but tried!).

As Audrey Hird, an experienced mindfulness practitioner was hosting an interactive presentation, I HAD to go. So I did!

Not much scope for writing during that as I was in ‘the zone’. Comparing thoughts. Not much use that statement, but as I am not going to write down as occurred I can only advise – if interested – to investigate further!

·             The Here & Now.

·             There were approximately 30 people in a circle for the presentation.

·             Asked to keep eyes shut for 2 minutes, then again with Audrey saying to focus on body parts. The reflective time feels different. Honest!


·             Best having feet flat on the floor during practice.


7 Things Mindful People Do Differently

Living with MS Edinburgh 2016. Fabulous event for which I am grateful to have been present for! Looking forward to MS Life 2016!

Here’s hoping what you've read, seen, listened to has been exciting, entertaining, educational and more! It’s going nowhere.
Thank you; Roger!



Comments

Popular posts from this blog

F1 Aerodynamics in Schools

Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge.  BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a

MS blog October 2023

  MS blog October 2023 25/9/23 This week of this, bad sleep, fatigue, affecting speech - #Dysphasia - and fatigue linked problems like forgetting to do certain things, eg. Download Toon ticket properly! Tired.                                                 04/10/23 (Wednesday) Again bad sleeps, bad #fatigue. Here's the thing. More notable 'cognitive overthinking' in that I am not on the money. Yet, was fine for the #MS #Zoom on Monday night. And starting to unintentionally upset Catherine, and therefore me too.   FB post:   #Tysabri At time of writing, I am pretty bloody next-level-tired. Or feeling fatigued, in the #MS world. Those who know that; know. Yes, I AM saying that #MS #Fatigue IS different to ‘just’ being tired. Who am I to say that? Someone who has lived with the twat (#MultipleSclerosis) for maybe 26 years now. Maybe more. I don’t know. So, #Tysabri. Well I started with this amazing #DMD (disease modifying drug) over 13 years ago, and it “made me a new man”

Ocrevus

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi