Skip to main content

Coronavirus realisations? Its a positive!


Coronavirus realisations?


This is fun isn’t it? Hopefully I am not going to repeat my previous Coronavirus blog [there!], but sure there will be overlaps!

What realisations am I on about then? This / these struck me very recently. The staying indoors more as we are supposed to – previously explained! – giving me more 'boring me time’, giving positives?

I am doing what I can the best for my physical and mental health, under ONE set of rules. MINE. I haven’t got to be anywhere at a certain time, do anything specifically, rest not-guiltily…

Aye, sounds like they all go directly against the set of government COVID rules; but it doesn’t.

Let me explain a bit. The statement that was said was to stay indoors, and remains overlying advice. So, I am ‘adhering’ mostly to this straight away. Fun?

Well actually! For example, when I have the/some permitting energy I may attempt to do:

  • Some kind of morning fitness – MS friendly YouTube mixture; like Pilates, yoga, stretching.

  • Afternoon MS YouTube fitness with/without dumbbells (gun dreams are history).

  • Take an occasional short walk


These are NOT done in any usual day I must add! I wish that was the case. Just saying.

The good thing? I feel that with less actions 'to do' it seems to be equalling less stress; less routine working well for me and my MS? Or just 'Tysabri time' being kind? Or both?

Whatever it is I do feel like I am feeling dare I say generally a bit better! Still bigger-pictured knackered, that’s a bloody given (my friend insomnia is always with me, MS fatigue also reminds me regularly too) but as A coronavirus positive I accept it.



Bleep over! #stayhome #stayindoors #staysafe #drink

Comments

  1. How true! Who has either the time or the energy to do that everyday if not locked down indeed! This quarantine has proven to be a great chance to take good care of ourselves, both physically and mentally. So many books to read, thoughts to be organised, habits to be tested. Blogs to be created ;) Congrats Roger! (the name is Nadia Diolintzi btw but this is how we spell it in greek)

    ReplyDelete

Post a Comment

Popular posts from this blog

F1 Aerodynamics in Schools

Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge.  BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a

MS blog October 2023

  MS blog October 2023 25/9/23 This week of this, bad sleep, fatigue, affecting speech - #Dysphasia - and fatigue linked problems like forgetting to do certain things, eg. Download Toon ticket properly! Tired.                                                 04/10/23 (Wednesday) Again bad sleeps, bad #fatigue. Here's the thing. More notable 'cognitive overthinking' in that I am not on the money. Yet, was fine for the #MS #Zoom on Monday night. And starting to unintentionally upset Catherine, and therefore me too.   FB post:   #Tysabri At time of writing, I am pretty bloody next-level-tired. Or feeling fatigued, in the #MS world. Those who know that; know. Yes, I AM saying that #MS #Fatigue IS different to ‘just’ being tired. Who am I to say that? Someone who has lived with the twat (#MultipleSclerosis) for maybe 26 years now. Maybe more. I don’t know. So, #Tysabri. Well I started with this amazing #DMD (disease modifying drug) over 13 years ago, and it “made me a new man”

Ocrevus

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi