Skip to main content

'tis the season


Season change


Autumn is in full force. Is it? Well the leaves think so and the cooling weather thinks so; or does it?! Recently there have been temperatures up here (the north east) hitting bloody 20°C! Yes, that is nice in summer months (obviously higher please; and was this year to be frank!) and not one to whinge about any other time; unless.

Unless? Well, you know where I’m going with that. Yip, M bloody S. Temperature can be a nasty (for want of a taboo-free word!) trigger. Can. Not everyone granted, and depending on the type of temperature; e.g. dry or damp/humid. Enough of that; for now.
It is currently October and so far, so good in that I’m having (touch wood) a good month with a few notable ‘good’ days. Those who know what I mean by that, know.

Just a month then? Yes, in that apart from A great week last month, I did not really enjoy September. Change of season? Who knows! Now it’s been and gone - moving on!

What is/are the change/s making a positive change? Well. Thinking of the first week of this month 3 big factors spring to mind. Maybe a 4th…

It was the second week after my Tysabri treatment. Usually the best of the 4-week period.

Exercise! With the positivity affecting the motivation in a good way, I have managed to achieved a bit more exercise. Good for all and one of the best for MS. Energy! Still affected by fatigue at times that’s a given unfortunately, but we deal with it best we can and in our own way/s.

Somethings else has happened, that has occurred before, and doing again… NOT drinking! Do not assume anything with that – I have NO drink problem – only a social drinker! However. I have known for years (FAR TOO LONG) that it affects my sleep badly. Am I cured from bastard insomnia now?
Of course not, just get a higher quality sleep and thereafter feel better for it! So, this month is a dry month (by choice, not the ‘Go Sober October’ thing). Who knows if it will continue! (I do fancy a beer though!)



 Another activity I did do anyway, just clearer (and arguably more) and for another blog… Meditation. Loving it.

Where does that leave me? Still in the same place geographically. The work thing will never leave until. Acceptance of that topic is as big as a mental health challenge for me as any. Long story and ongoing. Stop there with that Roj. For now!


Labels:

Comments

Post a Comment

Popular posts from this blog

MS

Living with MS Edinburgh *This is my bit blog and therefore my thoughts/options * on Living with MS Edinburgh being an information day for anyone affected by MS that I happily attended, and will be more about the day than the travel to and from it ! This event was held in the Sheraton Hotel which was beautifully laid out, in a spacious floor in the hotel with many orange-clad volunteers supporting the 150 attendees. MS Scotland The area in the hotel had been planned well, wasn’t too big or small offering fine accessibility and had plenty of MS stuff throughout! So what was the order of the day, what happened? It began with a welcome from the chair, Mary Douglas from the MS Society Scotland (9:45 – 10:00) welcoming us and touching on what was ahead. Breaking Boundaries in MS Research , was started straight after ( ~ 10:00) by Becky Driscoll. A fairly generic(ish) overview (IMO!) of MS initially, presented very well. The content was detailed and shows/sh...
Post a Comment
Read more

Is what it is

Is what it is IT IT IT! There is no “It” in the title. Well, apart from actually making up the word “tITtle”! Not a mistake. When chatting about whatever, and #MS comes up as pretty usual when at an MS Social, that phrase is an acknowledgement of acceptance (canny phrase itself!). By saying it, we know that we do know what we/it mean/s. Good repeatability there! For myself, even by voicing it with another understanding MSer, it’s like a ‘mutual respectful recognition’ sharing. Acceptance. Here’s a tangent. I have recently started with Ocrevus as my DMD . So far (literally a couple of months as of typing) so good. It is doing it’s thing. I’m no better, and much more importantly no worse. Yes, I have had questions about my Ocrevus, due to the lowering of one’s immune system, and feeling terrible for a while. But! This time of year everybody seems to pick up a ‘bug’ or 2. Even some bloody COVID – I didn’t – phew. SAD. That’s S.A.D. “Seasonal affective disorder (SAD) is...
1 comment
Read more

Ocrevus

  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi...
Post a Comment
Read more