MS Sessions 2017 Prague - Sunday
MS Sessions 2017 Prague
Sunday 26th November 2017
My 50th blog belongs to MSSessions2017 Sunday! What a second day with the Shift.ms family of fellow MSers! Information galore with such a vibe. EVERYBODY fully loving it – so relaxed in that we all knew there was nothing to be ashamed of MS-wise; that cloud that exists dare I say ‘in the public all of the time’, but not at the Prague MS festival 2017!
Dr Conor Kerley
What about nutrition?
- We are food
SWANK dietary food ( good)
Conor a good talker going through a lot of data we know – some of us, not all – quickly and funnily!
Kerley’s rule! Shadow must be shorter (Remember Kerley's rule for #vitaminD production: your shadow should be shorter than you!)
- Foods with antioxidants protect the skin
Klava Novotna - Fitness leader
Improve cardio-respiratory, strength, mobility, mood
WALK MORE. 10000 steps a day; actually is 6500-8500 with MS
Motivation
- Start slowly
- Choose short-term goal
- Social support
- Exercise variant for indoors and outdoors
General recommendations
We are all different
Mix it up
Consult personal trainer
Respect fatigue
Drink water
Lukas Hana
Be kind to the mind, etc. Think about yourself, your thinking in a caring manner
Mindfulness - 47% of the time people don’t concentrate on the job at hand I didn’t know that
Procrastination.com – useful site for us procrastinators!
Good talk about mindfulness. I know it.
Indian monkey coconut banana analogy
*meta-awareness. Is on all the time
*meditation
Headspace. Surf the urge. Traffic lights.
So a lot to think about! Ha! Very useful and all about us and our own thinking, thoughts and how to ‘manage’ them for the better!
Moira Tzitzika - sex therapist
Love, sex & MS
Talking candidly and funny and relaxed about sex and GPs’ questions.
3 levels of problems
- Primary
- Secondary
- Tertiary
Good questioning - linked to tertiary problems; obviously (MS)
Shana Pezaro
Shana’s story- the one she does; brilliantly
Tips for campaigning:
1. Doesn’t have to be a big ask
2. Brown-nose those who provide services (network!)
3. Reach top gun (highest of the chain you’re communicating with)
4. Be specific when contacting top gun
5. Speak of £ benefit
6. Get to know what’s available. Meet and speak
7. Join a political party. Easier from the inside
8. Make public campaign ideas (media mad)
9. Join the MSS campaign network
10. Smile smile smile!
To get more young members:
Use networks, neurologists - explain project, doctors* and nurses to talk about you, discussion groups, forums
*newly diagnosed “where do you go?” and explain how we know about, e.g. denial
GP patient groups at hospital; who organises/coordinates them
Key messages (in closing summary)
Be kind to yourself
Use tools that we’ve seen/been given
Focus
on the good
Saw a video at the start, about what it is
Community and community building
Psychologically bullied. Dark place. Made a friend via Facebook in Vienna.
*connections. Facebook - “meet up” site? She studied it and others (social media)
Building Community.
Social Media - is NOT a replacement for human to human contact.
Youtube video of 1 bloke dancing by himself that becomes loads on a hill. Human.
And that was it! The end of the festival; 2017! I am honoured to have been able to attend such a truly amazing and unique event. As I have said, I just got in due to my age and cannot be more thankful to Shift.ms for giving me the opportunity. Something I will not forget – that speaks volumes itself!
I wrote in my scribble pad two words that for me I thought of MSSessions2017 outside of what I have said so far.
Emotionally brilliant
Did I cry?! No! Did I do I view it as a game changer for me? Yes. A further and deeper understanding and acceptance of my condition and how better to live with it. Priceless.
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