MS Sessions 2017 Prague
Sunday 26th November 2017
My 50th blog belongs to MSSessions2017 Sunday! What a second day with the Shift.ms family of fellow MSers! Information galore with such a vibe. EVERYBODY fully loving it – so relaxed in that we all knew there was nothing to be ashamed of MS-wise; that cloud that exists dare I say ‘in the public all of the time’, but not at the Prague MS festival 2017!
Starting in the same place as Saturday with the same crew (I think!) and I was still a bit mutton Jeff, I was looking forward to the 'food' start with Conor!
Dr Conor Kerley
What about nutrition?
- We are food
SWANK dietary food ( good)
Conor a good talker going through a lot of data we know – some of us, not all – quickly and funnily!
Kerley’s rule! Shadow must be shorter (Remember Kerley's rule for #vitaminD production: your shadow should be shorter than you!)
- Foods with antioxidants protect the skin
Klava Novotna - Fitness leader
Improve cardio-respiratory, strength, mobility, mood
WALK MORE. 10000 steps a day; actually is 6500-8500 with MS
- Start slowly
- Choose short-term goal
- Social support
- Exercise variant for indoors and outdoors
We are all different
Mix it up
Consult personal trainer
Be kind to the mind, etc. Think about yourself, your thinking in a caring manner
Mindfulness - 47% of the time people don’t concentrate on the job at hand I didn’t know that
Procrastination.com – useful site for us procrastinators!
Good talk about mindfulness. I know it.
Indian monkey coconut banana analogy
*meta-awareness. Is on all the time
Headspace. Surf the urge. Traffic lights.
So a lot to think about! Ha! Very useful and all about us and our own thinking, thoughts and how to ‘manage’ them for the better!
Moira Tzitzika - sex therapist
Love, sex & MS
Talking candidly and funny and relaxed about sex and GPs’ questions.
3 levels of problems
Good questioning - linked to tertiary problems; obviously (MS)
How to be an advocate in your country (link is not UK!).
Shana’s story- the one she does; brilliantly
Tips for campaigning:
1. Doesn’t have to be a big ask
2. Brown-nose those who provide services (network!)
3. Reach top gun (highest of the chain you’re communicating with)
4. Be specific when contacting top gun
5. Speak of £ benefit
6. Get to know what’s available. Meet and speak
7. Join a political party. Easier from the inside
8. Make public campaign ideas (media mad)
9. Join the MSS campaign network
10. Smile smile smile!
To get more young members:
Use networks, neurologists - explain project, doctors* and nurses to talk about you, discussion groups, forums
*newly diagnosed “where do you go?” and explain how we know about, e.g. denial
GP patient groups at hospital; who organises/coordinates them
Key messages (in closing summary)
Be kind to yourself
Use tools that we’ve seen/been given
on the good
Anne Scott - founder of Girl Gone International
Saw a video at the start, about what it is
Community and community building
Psychologically bullied. Dark place. Made a friend via Facebook in Vienna.
*connections. Facebook - “meet up” site? She studied it and others (social media)
Social Media - is NOT a replacement for human to human contact.
Youtube video of 1 bloke dancing by himself that becomes loads on a hill. Human.
And that was it! The end of the festival; 2017! I am honoured to have been able to attend such a truly amazing and unique event. As I have said, I just got in due to my age and cannot be more thankful to Shift.ms for giving me the opportunity. Something I will not forget – that speaks volumes itself!
I wrote in my scribble pad two words that for me I thought of MSSessions2017 outside of what I have said so far.
Did I cry?! No! Did I do I view it as a game changer for me? Yes. A further and deeper understanding and acceptance of my condition and how better to live with it. Priceless.