Living with MS Edinburgh: MS

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Living with MS Edinburgh: MS: Research I always like to attend research talks at suitable – MS! – events to try and keep up to date as an interested patient. We know...

Research and Mindfulness blog of the fantastic day! #LwMS

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Newly Diagnosed MS Presentation 2023

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Newly Diagnosed MS Presentation 2023 In June 2023 I was asked by the Multiple Sclerosis Society if I could assist with an event for some people recently diagnosed with #MS. I was asked to give an approximate 10 minute presentation as someone with MS to talk about my experience of being diagnosed and life since diagnosis – have to say, it needed to be realistic but upbeat too! I happily accepted! The event was at the Grand Hotel, Gosforth, Newcastle, 15th July.  See the running order below, followed by the speech I wrote and gave:   The running order was:   10.15 for 10.30 start – welcome 10.45                  Gill, MS specialist nurse, RVI on the role of the MS nurse 11.15                  Dr Martin Duddy, explaining MS, research and treatments 12.15                  comfort break 12.20 /12.15        Personal perspective of being diagnosed – Roger 12.45         Over to you – chance for people on their tables to share their experiences and learn from                   
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F1 Aerodynamics in Schools

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Being a STEM Ambassador, I keep check with what STEM enrichment activities are planned that I feel I could support with my experience. I saw an “ F1 Aerodynamics ” related request and it tickled my buds somewhat! So I vested my interest via the formal portal/method to/with STEM and this was responded to. What was the challenge? It is a global competition given as per: “ The Competition - What's It All About? You are a Formula One™ team commissioned to design, construct and race the fastest Formula One Car of the Future, powered by compressed air cylinders. ” The first of the activities was in a middle school in Whitley Bay, to simply share my experience (having been an Aerodynamicist) with the Year 8 kids taking part in the F1 challenge. I enjoyed helping them with what they were doing at that part of their challenge.  BBC! Wow. I would have loved to have had that opportunity at that age. Unbelievable! Showing my age, a bit?! (my middle school had a
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Ocrevus

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  Ocrevus . Notes 1 The infusion was completed at 1pm, and I was asked to wait for 15 minutes after the cannula had been removed. I was told to take it easy for the rest of the day, that'd I'd be tired. Body not used to the new drug, nor my mind, given that I had been anxious about #Ocrevus day. Ok then, I'll accept a lazy day. Was planning a curry takeaway anyway! I am tired. A few nights of bad / poor sleep. Ocrevus. Notes 2 Second infusion (second half dose) done by 1ish. Then again asked to rest for the day. Yes, as per, I was tired. #Anxiety due to an earlier taxi booking (for 07:20), with the small alarm fear! And also a few wake-ups during the night. Usual, but! Prepared with laptop, phone (obviously), headphones, sarnie, bottle of water, and chargers in case. And a BBCi downloaded film. The same as my first unknown Ocrevus trip. Slower start than last infusion, but after the paracetamols and antihistamine, the weak steroid infusion did its thing for half an hour; wi
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